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Soft Tissue Tumors in Children and Adolescents:
A Morphologic Pattern Oriented Approach with Molecular and Genetic Correlations
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Section 4 -
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Kaposiform Hemangioendothelioma (KHE)

Cheryl M. Coffin, M.D. David M. Parham, M.D.
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Clinical History:
A 7-month old female presented with a vascular mass on the jaw, multiple capillary hemangiomas on the
abdomen and thigh, and a history of thrombocytopenia and anemia. She had previously received a
tracheostomy for airway obstruction by a vascular mass, which had not been biopsied. An MRI scan
demonstrated an enlarging heterogenous mass involving the soft tissue of the right neck and
retropharyngeal space, without skull or intracranial involvement. A variety of treatments had failed,
including systemic steroids, interferon, and embolization. Weekly vincristine, intermittent interferon,
and intralesional steroids were given. A biopsy was performed two months later.

Following the biopsy and continuation of vincristine and interferon, growth stabilized, and the mass
became more heterogenous on MRI scan. Platelet count returned to normal following administration of
Amicar.

Discussion and Differential Diagnosis:
This case represents an example of KHE with overlapping features of tufted angioma (TA),
therapy-related changes, and Kasabach-Merritt syndrome. The biopsy was obtained three months after
initiation of therapy with vincristine, interferon, and intralesional steroids. The points for
discussion about this case include the pathologic findings, the differential diagnosis and comparative
features of KHE and TA, the therapy-related changes, and the Kasabach-Merritt phenomenon.

Histologically, the biopsy from the right neck masses revealed fibroadipose tissue and skeletal muscle
infiltrated by a lobular mass of vascular tissue separated by bands of fibrous tissue. The fibrous bands
contained small and medium-sized, irregularly dilated lymphatic channels. The lobules were composed of
tightly packed small capillaries, dilated congested capillaries, pericytes, and spindle cells with focal
arrangement into fascicles. In some areas, the vascular nodules formed tufts with a peripheral semilunar
blood vessel. The endothelial cells had large vesicular nuclei with small nucleoli and frequent mitotic
figures, but no atypical mitoses. No significant cytologic atypia was observed. Hemosiderin was present
within the vascular proliferation, especially in spindle cell areas. Immunohistochemical analysis
revealed reactivity in the endothelial cells for CD31, CD34, and vascular endothelial growth factor
(FLK1). Smooth muscle actin was positive in vessel walls, in bands of fibrous tissue, and in occasional
spindle cells. Muscle-specific actin staining had similar pattern, but was less intense. Approximately
20% of nuclei stained for Mib-1 (Ki-67). Factor VIII-related antigen staining was present only within a
few endothelial cells in larger vessels. The lesion was interpreted as a KHE with overlapping features
of TA. There was no evidence of angiosarcoma or Kaposi sarcoma. The pronounced lobular architecture,
fibrosis, and hemosiderin-deposition were attributed partly to treatment effects.

KHE is a locally aggressive, non-metastasizing, immature vascular neoplasm characterized by a
fascicular spindle cell growth pattern resembling Kaposi sarcoma. Although it most commonly occurs in
the retroperitoneum, the skin is a frequent site and it can occur in the head and neck region. KHE
typically presents in infancy and the first decade of life. It is rare in adults. Males and females are
equally affected. Cutaneous lesions appear as ill-defined violaceous plaques. The major complications
of KHE are blood loss and consumptive thrombocytopenia. Gradual but incomplete regression has been
observed. Unlike Kaposi sarcoma, there is no known association with HIV infection or human herpes virus
type 8. A nodular architecture with surrounding fibrous tissue containing dilated lymphatic vessels
resembling lymphangioma is seen in some examples of KHE. The ill-defined nodules contain a mixture of
small round capillary-sized vessels that blend with slit-like vessels. Glomeruloid nests of endothelial
cells containing hemosiderin and vascular nodules with semilunar vessels at the periphery may be seen.
The spindle cells are usually nonreactive for factor VIII-related antigen, but the lesion is positive for
CD34, CD31, and D2-40, and actin stains focally highlight spindle cells.

The differential diagnosis of KHE includes cellular capillary hemangioma (cellular juvenile or
infantile hemangioma), TA, spindle cell hemangioendothelioma, and Kaposi sarcoma. Cellular capillary
hemangiomas of infancy have a distinct nodular pattern with small capillary-sized vessels and absence of
spindle cells, erythrocyte fragmentation, and hemosiderin. They typically express Glut-1, in contrast to
its absence in KHE. TA typically displays a cannonball pattern of dermal infiltration, but can bear
striking histologic similarity to KHE. Both KHE and TA can display a multinodular architecture, dilated
lymphatic paces, hemosiderin, and microthrombi. Occasional cases are encountered with features of both
KHE and TA, suggesting a relationship between the two. Spindle cell hemangioendothelioma lacks a lobular
architecture, has cavernous areas with papillae and vacuolated cells, and is found with hamartomatous
vessels. Kaposi sarcoma has a more uniform pattern of spindling, a prominent peripheral inflammatory
infiltrate, and immunohistochemical reactivity for human herpes virus 8.

Consumption coagulopathy, or Kasabach-Merritt syndrome, has been associated with a variety of vascular
tumors in childhood including KHE, other hemangiomas, chorangioma, and large vascular malformations.
Thrombocytopenia, hypofibrinogenemia, and anemia are typical laboratory abnormalities. Activation of
clotting within tumor vessels is the mechanism. Some evidence suggests that this phenomenon is more
frequently associated with KHE than other vascular lesions.

The clinical, radiologic, and pathologic features of residual vascular lesions following treatment of
Kasabach-Merritt syndrome have been reported. Pathologically, KHE was more frequent among biopsies taken
during the active phase of Kasabach-Merritt syndrome, and TA was more common in specimens from residual
lesions. Fibrosis and lymphatic spaces were common in the residual lesions. These changes differ from
the involutional changes of capillary hemangiomas.

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